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NIHR Central Commissioning Facility (CCF)
 

Patient and public involvement: information for researchers

The NIHR Central Commissioning Facility assesses the public involvement aspect of proposals submitted to its commissioning panels and regional committees through the participation of lay reviewers.

Applications that are technically excellent but have little patient or public involvement may be asked to address this before an offer of funding is made.

What is involved for programme applicants?

Programme applicants new to patient and public involvement (PPI) should familiarise themselves with the role of the lay reviewer in assessing their proposals and what is meant by public- and patient-based research.

As a contribution to understanding patient and public involvement from the perspective of the applicant, PPI was the theme of Director’s Message No 4 of the NIHR Research for Patient Benefit Programme (RfPB).

In RfPB Director’s Message No 4 (see above), examples of good PPI practice applicable to all NIHR research proposals were described as collaborative and each had some of the following characteristics:

  • Involvement of patients in the early development of the proposal
  • Equal steering group representation for professionals and lay people
  • Involvement of service users in designing questionnaires and topic guides, conducting interviews and focus groups, reviewing transcripts and contributing to interpretation and preparing patient information
  • Arrangements for participants to be informed of research findings
  • Involvement of patient groups and charities in disseminating the findings among patients and service users.

Want to assess your understanding of PPI?

Try the quiz created by PPI members from the NIHR Research for Patient Benefit Programme (RfPB) – it is a useful device for applicants to any NIHR programme interested in a quick appreciation of different categories of patient and public involvement.

People in Research

People in Research helps members of the public make contact with organisations that want to actively involve them in clinical research. One of the drivers for this UK Clinical Research Collaboration project (led by its Partner organisation, INVOLVE ), is research organisations or projects asking ‘How do we find people who want to get involved?’



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